Thursday, July 11, 2019

Life goes on

A lot has happened since I last posted.

We took the trip to the medical conference for DS2. The conference was fabulous, he was able to network with more adults than he has ever met with his disease, and he did a great job speaking on the closing panel.

The plane trip, not so much. As you may remember, I was nervous about flying with the wheelchair for the first time. I did everything possible to prepare. I contacted the airline. I booked the easiest flights I could find. I bubble wrapped the heck out of the chair. I taped notes showing where to pick it up, how to set the brakes, and - most importantly - a big one that said the chair weighs 415 pounds so be careful!

The process of getting DS on and off the plane multiple times was anxiety-inducing enough. I counted 10 transfers by the time we reached our destination and awaited delivery of the chair.

I saw it coming. And I could tell it was not good. The arm was bent so badly inward that there was no way to get DS in it. Upon inspection, it was clear the chair had been dropped, likely on the tarmac, on its side. Goes without saying that it was the side with the electronics. Miraculously, DS's caregiver was able to pull back the arm into a usable position and the chair still turned on. He couldn't use his tray - which holds his cell phone and his only means to contact people - but he could drive it. We filed a report and went on our way.

On the return trip, we had a nonstop red-eye flight. We arrived in plenty of time, sailed through security and got settled on the plane. Ten minutes later, we were told we had to deplane due to mechanical issues. More transfers. Back to the chair, which the airline had now had for 20 minutes. A man in a suit accompanied it with an apology that they had dropped it. Again. More damage. We departed four hours late and by this time I had no faith at all that the chair would be in the same condition when we arrived home. I was correct. This time, I got to watch from the plane as the chair was dropped on the tarmac by the two guys who didn't bother to read the note stating its weight. We added to the report and headed home. Our wheelchair guy was able to find used parts to get it working for the time being and the airline's third-party company is supposedly coordinating the purchase of new parts and repairs.

Needless to say, DS is done with flying.

Two other major events have occurred. The first is that I started a new part-time job! I'm able to work from home copy editing, which was my career before having to leave to care for DS. So far I am loving it and the extra income is greatly appreciated.

The other event is more somber. My husband's brother has been battling colon cancer for some time. He is now in his final days (today might actually be the day). My in-laws and their youngest son arrived this morning and are staying with us. BIL will have to sleep on the couch as I am out of beds.  Our church is providing some meals. I took them to the Hospice Home this morning and they are still there. It's very hard to watch someone die, but it will be a blessing as he is in such pain.

We are living highs and lows around here. We are two weeks out from DS1's wedding. I'm trying to keep that upbeat and exciting for him despite what is happening with his uncle.

On the financial front, I have been hitting the first student loan hard. I have it down below $1,000 now and plan to have it gone in the next couple months. Then on to the next one! Trying to shrink that debt list!

Sarah
 

2 comments:

  1. I have heard so many awful stories about wheel chairs and other important items getting tossed around - it's despicable! Congrats on the new part-time job! How perfect is that!! Sorry to hear about your brother-in-law and hope his suffering is soon over.

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  2. I am so sorry about your sons chair what a nuisance. I can see why you would just want to drive cross country with this mess. So happy yu are back to work and hitting the debt hard. This has been such a long journey. Passing from this life to the next is often not easy, and my heart goes out to you and your family. Oh but the glory of the other side. I always think of my mom and her reunion with their parents and brothers and I am filled gratitude for the atonement.

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