Friday, June 2, 2017

Still here

Contrary to popular belief, I am still here and still plugging along. The past month and a half has been a blur. DS's broken hip, 11-day hospital stay and subsequent recuperation have taken their toll.

DS is doing well. His pain is improving and he is able to tolerate water therapy sessions, which are great for him. The hospital bills are starting to come in - we're at $33,000 so far. Insurance should cover the bulk of it, but we shall see.

I received a letter from the attorney for the insurance company this week asking questions about the "accident" that landed DS in the hospital. I filled a form out and in not-so-subtle big letters, pointed out that he fell from a manual lift because the much SAFER option of a battery lift or a ceiling lift are not covered by insurance. Yeah, that decision cost the insurance company about $25,000. How's that working for you?

Meantime, still battling for a much-needed replacement wheelchair. The latest denial came two weeks ago. Approved are a seatbelt, armrests and a footplate. Not quite sure where those are supposed to go since the actual chair is denied.

Also on the insurance front, we are trying to get approval for the first-ever treatment for DS's disease. For 22 years, we've been working to raise money, raise awareness and find a treatment. It's finally, miraculously here and we can't get it. His neurologist emailed yesterday and said insurance is asking for another blood test, so we will get that done today. When I run the world, medical decisions will be made by doctors and not insurance suits.

I saw a lightning bug last night. And I had to turn on the A/C this week. Summer is here.

Sarah
 

4 comments:

  1. Sorry that you've had such a rough month. It is terrible how insurance companies treat patients. As a former home care nurse, I saw it time and time again. I hope your son's neurologist can work some magic and get him approved for the treatment.
    Thanks for letting us know you are still around!

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  2. Life is just crappy sometimes but son is on the mend and you are moving forward. I am sorry for all your difficulties smile, you are a wonder woman.

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  3. I just don't know how you keep going sometimes, especially with the insurance idiots causing you so much stress. You are some special kind of woman, that's for sure. I'm glad DS is improving but also hope you can take advantage somehow of the new treatment.

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  4. I hope your son's neurologist can work some magic and get him approved for the treatment.


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