Wednesday, April 26, 2017

Day by day

I'm in my not-so-comfy sleeping chair at the hospital listening to DS's Bi-Pap machine hum as I write this. What a day. He's still in pain (apparently, the break is so high up they're calling it a broken hip) and having to be repositioned often. It takes two nurses to do this. And yet, a caseworker arrived today to announce that because his vitals are stable, insurance will likely deny him staying longer and we need to start the discharge process.

DS freaked out. I know if they had a blood pressure cuff on him, the numbers would have been sky high. He knows what I know. If he is released now, he will have to go by ambulance - he cannot drive his chair. And when we get home, I won't be able to care for him alone. Just yesterday, the doctor told him he was going to keep him through the weekend and look at releasing him Monday. That would be almost two weeks since the accident and reasonable. The bone should heal enough by then to make his pain level manageable.

I despise our health care system. I hate that some suit at an insurance company is calling the shots. Why do we go to the doctor if we can't follow their orders because they won't get paid if we do?

Insanity. It's insanity.

On a related topic, I've officially had my fill of hospital cafeteria food. So when a friend texted to say she was bringing dinner, I was thrilled. At the appointed hour, she called. She was at my house. I was at the hospital. Our wires had gotten crossed. I told her to leave the dinner in the kitchen and DH would have it tonight when he gets home from work. Back to the cafeteria for me.

We're living day by day. It's all we can do.

Sarah
 

Monday, April 24, 2017

When life takes a detour

I had a lot of plans for this week. And I had to scrap them all.

Instead, I'm parked next to DS's bed in the local hospital. He fractured his femur in an accident, and because of his disease, neither surgery nor a cast were a good option. Instead, we are hoping to let it heal on its own. Because we cannot care for him at home while he is at this level of pain, he will remain in the hospital and likely be moved to a rehab facility for several weeks until the pain becomes manageable.

He is 23, but is physically unable to press the call button or in any way to care for himself, and so one of us is with him 24/7.

Church friends have been providing meals and DS's friends have been providing moral support. I am thankful I'm organized enough that the bills will be paid on time with little effort on my part.

We will get through this. Just have to keep our chins up.

Sarah