Monday, January 2, 2017

Hello 2017

Well, 2016 is in the books. Our family marked several milestones and endured several trials. In other words, we experienced life. Hopefully we emerged stronger and smarter. Well, stronger anyway.

On the debt front, we paid off $10,809.29. Not our best year, but a decent number nonetheless. I hope that younger folks who happen upon this blog have a moment where they realize how long it can take to dig out of stupid. Maybe it will keep them from making the same mistakes.

Our family's word for 2017 is hope. The first-ever treatment for DS's disease was approved by the FDA before Christmas. We are anxiously awaiting the drug company and insurers to sort out the numbers (estimated cost for the first year is $750,000). While the drug has not been tested on adults, there is HOPE that it will benefit them as well as the kiddos who have seen such remarkable results in clinical trials. After 23 years of living with a life-threatening disease for which doctors offered NO hope, we are overwhelmed and overjoyed.

DH and I spent the first day of the new year with our week-old granddaughter. If a new baby doesn't inspire hope, I don't know what does.

Time for a fresh start. Happy New Year, everyone!



  1. Hey not my best either, but new meds and new grandchildren? Really who cares (as long as we don't go backwards)

  2. Oh I HOPE and PRAY that DS gets some benefit out of the new meds and that it happens soon!!

  3. Just stumbled across your blog. Very motivating! Congrats on all the progress you've made!

  4. Wow what wonderful news - your lovely grandchild AND fabulous news for your son! I have been reading your blog for some time but never commented before. Had to this time as your news is just so great! Anna (in France)