Tuesday, August 16, 2016

It's that time again

Today, we start shopping for a new wheelchair for DS. His current one is five years old, which we have found to be about the lifespan of these things. But, more importantly, that's about the max time that can be allowed in between customizations as his needs change dramatically over time.

He came home from a quick trip to campus in preparation for school starting this week (his last semester!!) looking rather dejected. Turns out, driving on the bumpy paths at school caused his hand to be knocked off the joystick, leaving him stranded until someone stopped to help. Now he is worried about the logistics of getting around. We have had to hire another caregiver to stay with him part time while he's on campus.

So part of the chair concerns will be what kind of options there are for controlling it. His joystick is clearly a no-go from here on out.

Then there's the bottom line ... his current chair cost $38,000. No doubt this one will blow that total out of the water. Very, VERY thankful for decent insurance. It will come down to which add-ons insurance deems unnecessary but which are absolutely vital. It will be a fight. It always is.

My heart is breaking for my young man. He rarely complains and instead simply adjusts to his limitations with a grace that I doubt I would have. He just wants to keep up and his body continues to betray him. He deserves more.



  1. You are a special parent. My heart goes out to you. Your son is so strong he will weather this next hurdle because you have shown him how. I wish I could do something. Here is a virtual HUG

  2. My heart breaks for you and your lovely son. Prayers, good vibes, and hugs.